4318000 -755650 DRAFT PROGRAMME TBI – to be invited TBC – to be confirmed 0 0 DRAFT PROGRAMME TBI – to be invited TBC – to be confirmed European Oncology Patient Congress “ON EQUALITY IN BEATING CANCER” Latvia, Riga, March 18 - 19, 2022 DAY 1, March 18 Congress Opening 9.00 - 10.00 Registration 10.00 – 10.05 Opening. Moderator: Ivars Ijabs , Latvian MEP and representative of the Special Committee on Beating Cancer (BECA) of the European Parliament. [Confirmed] 10.05 – 10. 15 10.15 – 10.20 Opening speech. Olga Valciņa , founder of the Latvian Association of Oncology Patient Organizations “ OncoAlliance ”. The purpose of the Congress. Overview of the situation, access to cancer care in the EU Eastern and Central European countries . [Confirmed] Video greetings [TBC] 10. 20 - 10. 30 Stella Kyriakides , European Commissioner for Health and Food Safety. The EU’s objectives and strategy for beating cancer and ensuring equal care for oncology patients . [TB C ] 10. 30 – 10. 45 Bartosz Adam Arłukowicz , chair of the Special Committee on Beating Cancer (BECA) of the European Parliament. What instruments are needed to implement the resolution and lessen inequalities in all cancer care spectrum among the EEU and CEU countries. [TB I ] 10. 45 – 11. 00 Dr Bettina Ryll , a patient advocate and founder of the Melanoma Patient Network Europe. Main aspects of inequalities in cancer care and their consequences. [TB I ] Plenary Session 1. Inequalities: patient and HCP perspective 11.00 – 12.00 Topic: Ways of implementing the principle of equality by synchronising EU cancer care standards at national level. Congress Resolution’s paragraph “Common principles of the inclusion of innovative medical technologies in reimbursed health services for oncology patients in the EU countries”. Moderator: Mārtiņš Daugulis [Confirmed] Video content: Speakers: Participants in discussion Situation analysis (facts and figures). Speaker 1 – Representative of the Cancer Inequalities Registry in respect to Europe's Beating Cancer Plan. Robert Greene , Member of the European Cancer Organisation’s Patient Advisory Committee and Board Member of the European Cancer Patient Coalition / Linda Gibbs [TBI] Speaker 2 – Dita Dzērviniece , Senior Associate at PricewaterhouseCoopers Legal Latvia . Patient rights in the EU - main provisions of EU patient rights that are mostly breached by unequal cancer care. [ Confirmed ] Speaker 3 – Prof. Sonata Jarmalaite , Deputy Director for Research and Development in National Cancer institute, Vilnius (Lithuania) . Inequality with respect to the patient age and cancer location . Medical, ethical , and economic consequences. [TB I ] Participant 1: Menia Koukougianni , founder – CEO of Karkinaki , Greece. Disparities of paediatric cancer care in the EU in respect to access to childhood cancer services . [ Confirmed ] Participant 2: Viktors Kozirovskis , KOL, oncologist – chemotherapist. Experience of Latvia in tackling inequalities in cancer care. [ Confirmed] Participant 3: Kadri Putnik , oncologist , a chemotherapy doctor in the oncology-haematology department of the North Estonia Medical Centre . Experience of Estonia in tackling inequalities in cancer care. [TB I ] Main thesis of the discussion Inequality – one of the main reasons of preventable mortality Inequality – a setback of overall healthcare quality and development 12.00 – 12.30 Break For In-Person attendees For online viewers Coffee break at the premises of the Congress. Live stream programme on Facebook – interviews , reflections on the content of the Congress . - An interview with Bartosz Adam Arłukowicz , chair of the Special Committee on Beating Cancer (BECA) of the European Parliament. - Professor at the University of Latvia and representative of the EU Cancer Mission Mārcis Leja . Previously recorded video interview: - Co-founder and CEO of “ MikroTik ”, President of AmCham Latvia John Martin Tully – the importance of dedicated financial support of the private sector in beating cancer inequalities. Plenary Session 2. Inequalities: political perspective 12.30 - 13.30 Topic: Congress Resolution’s paragraph “ T he European Beating Cancer Plan and its funding should facili tate the principle of equality in cancer care in e very EU country”. Equal access to cancer care - diagnostics, treatment, reh abilitation, palliative care - in the Eastern and Central European countries of the EU: equal access to medication, including personalized (aka precision) therapy, equality in access to diagnostics, treatment and cutting-edge treatment technologies, opportunities for national oncology patients of remote cross-border care. Moderator: Ivars Ijabs , Latvian MEP and representative of the Special Committee on Beating Cancer (BECA) of the European Parliament. [Confirmed] Video content Relevant facts and figures. Speaker Participants in discussion Speaker 1 – Prof. Mark Lawler, board member of Europe Cancer Organisation. How the financial resources foreseen by “Beating Cancer Plan” could help the national healthcare systems to decrease existing inequalities. [TB I ] Speaker 2 – Mārcis Leja , Professor at the University of Latvia and ex- representative of the EU Cancer Mission. Tools how to implement EU Cancer Mission’s recommendations at national levels. [Confirmed] Speaker 3 – Partha Basu , Deputy Head of Early Detection, Prevention & Infection Branch of International Agency for Research (IARC) on Cancer about DG REFORM project. [Confirmed] Participant 1 – John Ryan, EC DG S ANTE representative. The reasons for absence of pan European directives in respect to cancer care (in contrast to food safety, agriculture etc.). [TB I ] Participant 2 – Daniels Pavļuts , Health minister of Latvia . [TB I ] Participant 3 – Health minister of Lithuania [TB I ] Participant 4 – Health minister of Estonia [TB I ] Participant 5 Uldis Mitenbergs Head of the World Health Organisation Country Office Latvia, lecturer in Health Economics. Value Based Healthcare . [TB I ] Main thesis of the discussion How the implementation of the Plan will reduce inequalities of cancer care in EU countries. What are the binding obligations and tasks of national governments to make the plan really work and reduce cancer care inequalities? 13.30 – 14.30 Lunch Break For In-Person attendees For online viewers Lunch break for attendees at the premises of the Congress. Live stream programme on Facebook: 13.30 – 14.15 Press conference for journalists attending the Congress online . Aims & objective of the Congress. Main points of Congres s Resolution. Questions & answers. Speakers: - representatives of Latvian Association of Oncology Patient Organizations “ OncoAlliance ”, - Ivars Ijabs , Latvian MEP and representative of the Special Committee on Beating Cancer (BECA) of the European Parliament. - Dr Bettina Ryll , a patient advocate and founder of the Melanoma Patient Network Europe. Main aspects of inequalities in cancer care and their consequences. Video content 15 min. Plenary Session 3. The role of patient advocacy in reducing cancer care inequalities 14.30 - 15.30 Topic Moderator Speakers The role and opportunities of patient organizations in ensuring the implementation of EP Resolution “On strengthening Europe in the fight against cancer – towards a comprehensive and coordinated strategy”. Martiņš Daugulis [Confirmed] Speaker 1 - Dr. Marius Geantă , President and Co-founder of the Center for Innovation in Medicine, Romani a . The role of cooperation between patient NGO’s and health professional organisations. [ Confirmed ] Speaker 2 – Toivo Tänavsuu , Hille Tänavsuu Cancer Treatment Foundation/ Vähiravifond Kingitud Elu (Estonia). He shares the Estonian experience of how they have in 7 years practically eliminated the modern cancer care inaccessibility problem by mobilising the society through private donations. [Confirmed] Participants in discussion Speaker 3 - Representative of Lithuanian Cancer Patient Coalition (POLA). [ Confirmed ] Participant 1 - Zinta Uskale , representative of NGO “Pink train foundation”, Latvia. [Confirmed] Participant 2 - Kristina Modic , Executive Director at Slovenian Lymphoma and Leukemia Patient association, m ember of the Board of Myeloma Patients Europe , Vice President of Patients council at Oncology Institute of Ljubljana , President of ONKO NET Association of Slovenian Cancer Patient Organizations , received European Citizen’s Prize 202 1. [TB I ] Participant 3 - Tanja Španić , President of Europa Donna - European coalition, Chair of Patient Advocates Working Group at ESMO. [TB I ] 15.30 – 15.4 5 Break Video content [TBC] Plenary Session 4. The perspective of innovative and personalized treatment in cancer care 15. 45 - 1 7 . 00 Topic: Congress Resolution’s paragraph “Common quality standards of cancer care in the EU”. The need for a unified approach to cancer care, based on the guidelines and standards developed by professional organizations. Upcoming and most promising c ancer treatment innovations . Moderator: Valters Bolēvics , Director General of the International Research-Based Pharmaceutical Manufacturers Association of Latvia (SIFFA). [ Confirmed ] 15 . 45 - 1 6 . 00 1 6 . 00 - 16. 15 Participants: Speaker 1 – representative of ESMO . Importance of ESMO Guidelines in implementing the common cancer care standards and innovations all around the EU. [TB C ] Speaker 2 – Jin Young Park , scientist in the Section of Early Detection and Prevention at IARC. Potential topic - Personalized medicine in cancer care . [TBC] 16. 15 - 16. 30 Speaker 3 – Dr. Alinta Hegmane , Latvia. Spectrum of challenges of HCP in terms of adapting to the complex and rapidly changing cancer treatment paradigms and with respect to doctor - patient communication. [Confirmed] 16. 30 - 16. 45 16.45 - 17.00 Speaker 4 – Representative of National Institute of Oncology of Budapest. [TB I ] Speaker 5 – Scientist. Challenges of personalised medicine for patients in terms of adherence, informed decision-making etc. [TBI] 17. 00 - 17.15 Closing notes. Signing of the Open Letter C ontent of the Open Letter - video presentation Signing of the Open Letter to be passed to the European Parliament, the European Commission and the national governments of the EU countries represented at the Congress . Only patient organizations are entitled to sign . Closing note. 18. 0 0 – 20.00 Dinner buffet for attendees at the premises of the Congress. DAY 2, March 19 Patient organisations - closed session 9.00 – 10.00 Content/speakers will be specified [TB I ] 10.00 – 11.00 Content/speakers will be specified [TB I ] Press conference - Resolution’s submission to the Government of Latvia 11.00 – 12.00 Participants: Olga Valciņa , founder of the Latvian Association of Oncology Patient Organizations “ OncoAlliance ”. [Confirmed] Representative of the National Health Service of Latvia. [TBI] Daniels Pavļuts , Health minister of Latvia [TBI] Andris Skride , Chairman of the Social and Employment Matters Committee, the Parliament of Latvia. [TBI] Ivars Ijabs , Latvian MEP and representative of the Special Committee on Beating Cancer (BECA) of the European Parliament. [Confirmed]
Saatja: cancerequality.eu <
[email protected]>
Saadetud: 08.12.2021 07:37
Adressaat: Tanel Kiik <
[email protected]>; Maarjo Mändmaa
<
[email protected]>; SM Info <
[email protected]>
Teema: European Oncology Patient Congress
Tähtsus: Tavaline
European Oncology Patient Congress On Equality in Beating Cancer, Riga,
Latvia, March 18-19, 2022
Dear Mr.Kiik!
We are applying to You regarding European Oncology Patient Congress On
Equality in Beating Cancer that will take place in Riga, Latvia, March 18
19, 2022. The main organizer of the Congress is Latvian Association of
Oncology Patient Organizations OncoAlliance with a special support of the
Deputy Office of the European Parliaments Special Committee on Beating
Cancer (BECA).
The main aim of the Congress is to bring the issue of existing cancer
management inequalities in the countries of Eastern and Central Europe
into the spotlight as well as to discuss it with patient organizations
and NGOs, health care professionals, politicians, and members of the
European Parliament.
To ensure the practical implementation of the aims of the congress into
the real life, the participation of decision makers and politicians is
very essential. Thats why we would like to apply to you with a following
request to honour the Congress with your presence in a status of debate
participant in plenary session on political perspectives of reducing
cancer care inequalities (Inequalities: political perspective).
The main task of this plenary session to discuss, how the implementation
of new EU Cancer Beating Plan would minimize the inequalities of cancer
care all over the Europe and what could be the binding tasks and
responsibilities of national governments to make it work.
Please, find the recent draft programme of the Congress enclosed.
By the end of the Congress patient organizations from Eastern and Central
Europe will sign the Open letter, that afterwards will be passed to the
European Parliament, the European Commission, EU national governments,
decision makers, healthcare institutions and mass media.
The event will be held in Riga. In case of favourable epidemiological
situation we would be very grateful if You could attend the Congress in
person.
We are fully aware that only joint efforts and contribution as well as
your special expertise, experience and insight in cancer patient pathways
could make this event happen at the level of excellent quality and have a
long-term impact on patient treatment in Eastern and Central European
countries.
We would be very much obliged if you could respond to our request by
December 17. Travel and accommodation costs, as well as a speakers fee
will be covered by Congress organizers.
Kind regards,
Helmuts Bçíis, Head of OncoAlliance
Olga Valciòa, Member of the Board of OncoAlliance
Ivars Îjabs, Vice-Chair, EP Special Committee on Beating Cancer (BECA)
Prof. Mârcis Leja, EC Cancer Mission Council Expert
Vita Savicka, Baltic Communication Partners Ltd., Head of the Board