Nimetamine

Ref. Ares(2023)4812299 - 11/07/2023 EUROPEAN COMMISSION DIRECTORATE-GENERAL FOR HEALTH AND FOOD SAFETY Public Health, Cancer and Health security Luxembourg SANTE.B.3/NL NOTE FOR THE ATTENTION OF PERMANENT REPRESENTATIONS OF THE MEMBER STATES OF THE EUROPEAN UNION Subject: Nomination of the members of the European Reference Networks Board of Member States Commission Implementing Decision 2014/287 (1) sets out the modalities for the European Reference Networks (ERNs) Board of Member States. To ensure that the names of the representatives in the Board of Member States are up to date in our databases, we kindly invite you to consider the current representatives and to provide us with your country’s nominations. As per the Rules of Procedure of the ERNs Board of Member States2, please note that Member States are invited to nominate two representatives and that only these two officially nominated representatives are allowed to attend meetings and pass votes (3). Representatives may be accompanied by national experts, provided this is communicated to the Secretariat of the Board no later than 10 working days before a Board meeting, including reasons for which their presence is required. Therefore, you are invited to notify the Commission of your two nominated representatives to the ERNs Board of Member States. We would be grateful to receive their names, contact information, affiliation, and status as member or alternate, confirmed by the competent national health authority. Please find attached the corresponding nomination form template. Finally, we take this opportunity to highlight the importance of this role and the need to ensure adequate investment of time, energy, and resources in the ERNs Board of Member States. We count on the involvement of your competent national health authorities to help support the good functioning of the ERNs and the added value they bring to patients with rare diseases and their families. With this in mind, we recommend that at least one representative should be from your competent national authority for health. (1) OJ L 147, 17.05.2014, p. 79–87 setting out criteria for establishing and evaluating European Reference Networks and their Members and for facilitating the exchange of information and expertise on establishing and evaluating such Networks (2) Rules of Procedure BoMS (europa.eu) (3) One vote per Member State, so if both representatives are present only one has the right to vote.  Please send your nominations to [email protected] at the latest by 1 September 2023. The next meeting of the Board will take place on 24 October 2023 in Luxembourg. Donata MERONI Deputy Director c.c.: LARKINS Nichola; SENN Alina; LESNIC Evelina 2 Electronically signed on 11/07/2023 13:51 (UTC+02) in accordance with Article 11 of Commission Decision (EU) 2021/2121 Saatja: [email protected] <[email protected]> Saaja: [email protected] Teema: Nomination of the ERNs BoMS Dear Sir/Madam, Please find attached document ARES (2023) 4812299. We kindly ask you to send the filled annex 1 with your nominations to [email protected] <mailto:[email protected]> at the latest by 1 September 2023. Thank you in advance for your collaboration, ERNs secretariat. European Commission DG SANTE Unit B3 ‘Health monitoring and cooperation, Health networks’ Saatja: Webdesktop <[email protected]> Saadetud: 11.07.2023 18:05 Adressaat: <"SM Info">; <"Elen Ohov"> Koopia: <=?utf-8?Q?Agne_Nettan-Sepp_Br=C3=BCsselis?=> Teema: Webdesktop: Kiri nr 14-4/636 / Nimetamine - members of the European Reference Networks (ERNs) Board Manused: 636.pdf; 636_Annex_1_Nomination_form-Board_of_MS.pdf; 636_ekiri.msg Tere! Edastan Komisjoni kirja. Vastamise tähtaeg on 01.09.2023. EV AEEL juures reg. number: 14-4/636 Reg. kuupäev: 11.07.2023 Sisu: Nimetamine - nomination of the members of the European Reference Networks (ERNs) Board of Member States (healthcare providers across Europe/tervishoiuteenuste osutajad) -- Heade soovidega Tiiu Noobel sekretär, EV alaline esindus EL juures +32 2227 4337 Ref. Ares(2023)4812299 - 11/07/2023 Template - Appointment to the European Reference Networks Board of Member States Country: ……………………………………………………………….. Nominating Authority: (e.g. ministry of Health, health Agency, )……………….. Contact details of the nominating authority (name of the responsible person and email)………………………………………………………… Member Name: ……………………………………………………………….. Organisation:………………………………………………………… Tel.:…………………………………………………………………... E-mail:……………………………………………………………….. Alternate Name: ……………………………………………………………….. Organisation:………………………………………………………… Tel.:…………………………………………………………………... E-mail:……………………………………………………………….. Date and place Signature by the appointing authority Electronically signed on 11/07/2023 13:51 (UTC+02) in accordance with Article 11 of Commission Decision (EU) 2021/2121