Invitation to the ERDERA General Assembly Meeting from 29–31 October 2025 in Amsterdam

WELCOME TO AMSTERDAM 2ND GENERAL ASSEMBLY MEETING 29, 30 & 31 October 2025  The venue Amsterdam Universitair Medische Center, Amsterdam UMC is home to eight integrated research institutes. By joining forces, these research institutes organized their scientific research more efficiently and became a more attractive partner for large-scale, international and multi-year study all over the world. This was an interesting development for students and researchers, both within and outside the country. Our venue for this 2nd General Assembly Meeting will be the Conference Room 4 of the Amsterdam UMC building. Meibergdreef 9, 1105 AZ Amsterdam, the Netherlands  How to get to Amsterdam? Trains to Amsterdam Trains to Amsterdam: https://www.nsinternational.com/en Flights to Amsterdam Airport: Amsterdam Schiphol Airport (AMS) https://www.schiphol.nl/en/ Taxi Taxi: https://www.schiphol.nl/en/page/by-taxi-to-and-from-schiphol/ Also Bolt and Über are operating in Amsterdam Public transport Public Transport (OV) is the best and most sustainable way to travel in Amsterdam. Use https://9292.nl/en/journeyadvice to plan  How to get to the venue? From the airport By metro Take Inter-city Rail from Schiphol Airport: Intercity - Arnhem Centraal. Arrive at Amsterdam Bijlmer ArenA. Walk from Amsterdam Bijlmer ArenA to Amsterdam, Station Bijlmer ArenA. Take Subway: 54 – Gein. Depart from Amsterdam, Station Bijlmer ArenA. Arrive at Amsterdam, Station Holendrecht Walk from Amsterdam, Station Holendrecht to destination location. From other locations Consult https://9292.nl/en/journeyadvice or Google Maps. You can easily travel with your contactless Maestro, V PAY, Mastercard or Visa bankcard (check in and out!) see: https://www.ns.nl/en/customer-service/payment/ovpay.html or buy via 9292 app or from machines/kiosks in the stations. By Bike: You can rent a bike from the hotel or look for a Shared bicycles.  Accommodation COORDINATION OFFICE RECOMMENDS THE FOLLOWING HOTELS Hotel: Leonardo Royal Hotel Amsterdam Address: Paul van Vlissingenstraat 24, 1096 BK Amsterdam More info 16 km distance from the Amsterdam SchipholAirport. Next to Metro/train stop Overamstel. 9,2 km or 17 min public transportationfrom the venue. Fletcher Hotel Amsterdam – Fletcher Hotels Address: Schepenbergweg 50, 1105 AT Amsterdam 2,3 km or 14 min walking distance from the venue. OZO Hotels Arena Amsterdam Address: Karspeldreef 2, 1101 CJ Amsterdam 2,9 km or 22 min walking distance from the venue. Joy Hotel, Amsterdam Address: 385 Hullenbergweg, 1101 CS Amsterdam 3,1 km or 19 min walking distance from the venue. Holiday Inn Amsterdam - Arena Towers Address: Hoogoorddreef 66A, Building A, 1101 BE Amsterdam 3,4 km or 28 min walking distance from the Venue, 16 min public transportation Click on the hotel name to visit its website and on the address to view its location on maps.  Accommodation COORDINATION OFFICE RECOMMENDS THE FOLLOWING HOTELS Courtyard by Marriott Amsterdam Address: Hoogoorddreef 1, 1101 BA Amsterdam 3,6 km or 30 min walking distance from the Venue, 14 min public transportation Hampton By Hilton Amsterdam/ Arena Boulevard Address: Hoekenrode 1, 1102 BR Amsterdam 4,4 km or 33 min walking distance from the Venue, 11 min public transportation Easy Hotel Amsterdam Arena Boulevard Address: Johan Cruijff Boulevard 129, 1101 DM Amsterdam 3,0 km or 36 min walking distance from the Venue, 11 min public transportation Bastion Hotel Amsterdam Amstel Address: Verlengde van Marwijk Kooystraat 30, 1114 AC Ouder-Amstel 8,5 km , 24 min public transportation Van der Valk Hotel Amsterdam Zuidas Address: Tommaso Albinonistraat 200, 1083 HM Amsterdam 9,6 km, 28 min public transportation Click on the hotel name to visit its website and on the address to view its location on maps.  Pre-Conference Dinner RESTAURANT IN DE WAAG Date: 29th October, 19:00 CEST Location: Nieuwmarkt 4, historical CentreAmsterdam https://indewaag.nl/ From the venue to the restaurant is easy to travel with Metro as well (24 min). Walk from starting location to Amsterdam, Station Holendrecht (6min), take Metro 54 direction CentraalStation from Holendrecht and step out Nieuwmarkt. From Amsterdam Central trainstation 7 min walking. From Airport several options, takes 30-40 minutes. From other locations consult: https://9292.nl/en/journeyadvice General Assembly Meeting Agenda 29-30-31 October 2025 ERDERA GA n°101156595 project is funded under call HORIZON-HLTH-2023-DISEASE-07 as a COFUND Action General Assembly Meeting 29-30-31 October 2025 Agenda This event will be recorded. The public session recording will be available on ERDERA communication channels. The closed ERDERA consortium meeting sessions recording will only be available to ERDERA consortium partners. Page 1 of 4  General Assembly Meeting Agenda 29-30-31 October 2025 Programme at a glance October 29th 2025 Afternoon Governing Board (GB), Multistakeholder Advisory Board (MAB) and Workstream Leaders ONLY Venue: Amsterdam UMC (Meibergdreef 9, 1105 AZ Amsterdam) Time (CET) Title Speakers 13:00 - 14:00 Registration & light lunch: Open to all registered participants GB & MAB & OG: strategic discussions for ERDERA 14:00 - 16:15 To be confirmed To be confirmed 16:15 - 16:45 Coffee and network break 16:45 - 18:00 To be confirmed To be confirmed October 29th 2025 Evening Venue: Restaurant IN DE WAAG (Nieuwmarkt 4, historical Centre Amsterdam) Time (CET) Title Speakers Closed ERDERA Consortium meeting 19:00 - 22:30 Networking Dinner: Informal Networking and Discussions Page 2 of 4  General Assembly Meeting Agenda 29-30-31 October 2025 October 30th 2025 Venue: Amsterdam UMC (Meibergdreef 9, 1105 AZ Amsterdam) Time (CET) Title Speakers Official Opening (open session) 08:30 - 09:00 Registration Yvo Roos, Amsterdam, UMC Board Member. 09:00 - 09:10 Welcome Daria Julkowska, ERDERA Coordinator, INSERM. Fanny Mochel (Remote), Director of the Reference Center for Neurometabolic 09:10 - 10:00 Keynote speech Diseases - La Pitié-Salpêtrière Hospital, APHP-Sorbonne University, Paris Bojana Mirosavljevic, Founder 10:00 - 10:50 Keynote Speech of Zivot-Life Association. 10:50 - 11:20 ERDERA Achievements ERDERA Coordination Office 11:20 - 11:45 Coffee and network break PLENARY SESSION 11:45 - 13:00 GB & MAB Feedback To be confirmed 13:00 - 13:45 Lunch Break 13:45 - 14:30 Monitoring To be confirmed Patient and Public Involvement and 14:30 - 15:30 To be confirmed Engagement (PPIE) Data Service Hub Workflow and 15:30 - 16:00 To be confirmed Assets 16:00 - 16:30 Coffee and network break BREAKOUT SESSION “Data workflows, data service Data Service Hub and Rare access, and support mechanisms” Disease Funding 16:30 - 18:00 " Expertise Service Hub and Clinical Expertise Service Hub and Research Network: Strengthening Clinical Research Network Support and Synergies" Page 3 of 4  General Assembly Meeting Agenda 29-30-31 October 2025 October 31st 2025 Venue: Amsterdam UMC (Meibergdreef 9, 1105 AZ Amsterdam) PLENARY SESSION Time (CEST) Title Speakers 08:30 - 09:00 Registration 09:00 - 10:30 Training To be confirmed Towards long-term 10:30 - 11:00 sustainability: Co-creating To be confirmed ERDERA post-grant 11:00 - 11:30 Coffee Break 11:30 - 12:00 Ethics activities and updates To be confirmed BREAKOUT SESSION Long term Joint Transnational Call strategy alignment: WP3 – Clinical Research Network – timelines and outputs from WP21 – WP18 Clinical Research Network and ATMP Workpackages on best 12:00 - 13:30 use of results for future calls. “WP14 & WP15 (Data Service Hub) connection with WP19 WP14 & WP15 - WP19 (Expertise Service Hub) methodological work” 13:30 - 14:15 Lunch “Uses cases (meta) data WP14 & WP15 - WP9 & WP10. pipelines)” “Rare Diseases Funding and 14:15 - 15:45 Expertise Service Hub: Rare Diseases Funding – Expertise Lessons learnt from Joint Service Hub Transnational Calls 2025 and preparation of future calls “ 15:45 - 16:15 Coffee Break PLENARY SESSION 16:15 - 16:45 Thematic Session Restitution To be confirmed Coordination and ERDERA Coordination Office 16:45 - 17:15 Communication Updates 17:15 - 17:30 Closing remarks To be confirmed Page 4 of 4 Saatja: Coordination Team <[email protected]> Saaja: Coordination Team Teema: Invitation to the ERDERA General Assembly Meeting from 29–31 October 2025 in Amsterdam Tähelepanu! Tegemist on väljastpoolt asutust saabunud kirjaga. Tundmatu saatja korral palume linke ja faile mitte avada. Dear ERDERA Consortium, We are pleased to invite you to the upcoming ERDERA 2nd General Assembly Meeting, which will take place from Wednesday 29th to Friday 31st October 2025 in Amsterdam. To kick off the General Assembly, we will begin with a networking dinner on the evening of the 29th (19:00 CET). 🍽️ Networking Dinner * 📅 Date: Wednesday, 29th October 2025 🕖 Time: 19:00 CET 📍 Location: Restaurant In de Waag, Nieuwmarkt 4, Historical Centre, Amsterdam 🗓️ General Assembly Sessions (plenary and breakout sessions) * 📅 Dates: Thursday 30th & Friday 31st October 2025 🕘 Start Time: 09:00 CET 📍 Location: Amsterdam UMC, Meibergdreef 9, Amsterdam We kindly inform you that in-person participation to the breakout sessions will be limited by the capacity of the meeting room. You will have to possibility to indicate if you wish to participate in those breakout sessions via the Registration Form <https://forms.office.com/e/0Q3Rsr3ppp> . If we reach the maximum number of participants, we will prioritize partners based on their WP involvement. ➡️ To confirm your participation and assist with logistics, please complete the registration form here <https://forms.office.com/e/0Q3Rsr3ppp> . More information, accommodation's recommendations and practical arrangements can be found in the attached logistics document. We look forward to welcoming you in Amsterdam. Best regards, In the name of the Coordination, Baptiste